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Kusajili – Centralise les essais cliniques mondiaux
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Pays: United Kingdom,Netherlands,Ireland,Portugal,France,Germany,Lithuania,Italy,Austria,United States
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MAJ Il y a 5 ans
Mucopolysaccharidosis (MPS) VI Clinical Surveillance Program (CSP)
The objectives of this program are: to further characterize the natural progression of MPS VI disease; to generate and disseminate information on the care and management of MPS VI patients to clinical and medical professionals; to provide a resource to physicians and patients by providing information for optimizing patient care based on aggregate data; to characterize the clinical response to long-term Naglazyme® (galsulfase) treatment; to further characterize the long-term safety of Naglazyme® treatment.
Pays
Australia
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Austria
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Belgium
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France
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Germany
,
Ireland
,
Italy
,
Lithuania
,
Netherlands
,
Portugal
,
Sweden
,
United Kingdom
,
United States
,
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Aucun
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Aucun
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