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Kusajili – Clinical trials directory
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Country: Lithuania,Ireland,Australia,Netherlands,Portugal,United Kingdom,France,Sweden,Italy,United States - Phase: ongoing - Promoter: nct
nct
Update Il y a 5 ans
Mucopolysaccharidosis (MPS) VI Clinical Surveillance Program (CSP)
The objectives of this program are: to further characterize the natural progression of MPS VI disease; to generate and disseminate information on the care and management of MPS VI patients to clinical and medical professionals; to provide a resource to physicians and patients by providing information for optimizing patient care based on aggregate data; to characterize the clinical response to long-term Naglazyme® (galsulfase) treatment; to further characterize the long-term safety of Naglazyme® treatment.
Country
Australia
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Austria
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Belgium
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France
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Germany
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Ireland
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Italy
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Lithuania
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Netherlands
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Portugal
,
Sweden
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United Kingdom
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United States
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organs
None
Specialty
None
Opened trial
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